Finding Resources

Finding Resources in Your Local Area

Don’t forget to find out what services and organizations are available in your local community. Even if you think you will not qualify for specific services, agencies may be able to make referrals to other organizations which may be of assistance.

Check the county government listings in your local phone book for information on agencies

Health and Human Services Department
Social Service Department
Public Health Department
Social Security Administration
Medical Board
Mental Health Department
Access governmental agencies and organizations online.
Contact the social service department of your local hospital or clinic.
Locate adult daycare centers and faith-based agencies.
Locate the local chapter of disease groups (i.e. American Heart Association etc)

The National Resource Directory
Website: www.nationalresourcedirectory.org

Developed by the Departments of Defense, Labor and Veterans Affairs for wounded, ill and injured service members, veterans, their families and families of the fallen, and those who support them. The Directory provides over ten thousand services and resources available through governmental and non-governmental organizations to support recovery, rehabilitation and reintegration into the community.

Disability.gov
Website: www.disability.gov

A federal government website providing easy access to disability-related information and resources, Disability.gov has links to relevant programs and services offered by numerous government agencies. It is designed as a one-stop website where people with disabilities can easily find the resources they need to fully participate in the workforce and in their communities. Included is a state and local resources map, which makes it easy to locate disability-related information in specific parts of the country.

Family Caregiver Alliance (FCA)
800-445-8106
Website: www.caregiver.org

FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.

The Healing Project
Email: amy@thehealingproject.org
Website: www.thehealingproject.org

The Healing Project is dedicated to providing support, education, resources, and help to those who face life-threatening and life-altering diseases and encourages those who have a personal story to share can submit an essay that will provide insight, hope, courage, and healing to those who may be newly diagnosed or living with the disease.

New Health Partnerships
Website: www.newhealthpartnerships.org

New Health Partnerships (NHP), a program of the Institute for Healthcare Improvement, is spreading collaborative self-management support, a system of care that promotes patient/family caregiver/provider partnerships to transform care for the chronically ill. The site offers valuable tools and resources that can be easily downloaded by patients, family caregivers, and their health care team

Next Step in Care
Website: www.nextstepincare.org

Offering a range of guides and checklists—most intended for family caregivers of persons with serious illness, with some specifically for health care providers—designed to make patients’ transitions between care settings such as rehab to home or home to hospital smoother and safer.

Video Caregiving
Website: www.videocaregiving.org

A visual education tool for family caregivers of loved ones with Alzheimer’s Disease, strokes or other physical disabilities. The site features exclusive documentary-style videos, created by a team of award-winning film producers, which follow real life people as real life stories and issues unfold. Here caregivers find tools to better understand and deal with their situation, and let them know that they are neither isolated nor alone in their struggle.

Caring for Elders

Vital information and possible support services for the elderly can be obtained by contacting your local county office of senior services or elder affairs as well as your local social service department. Area adult daycare centers may also provide information on resources for the elderly in your area. These numbers can be located in the governmental pages of the phone book or through a web query.

AARP
800-424-3410
Website: www.aarp.org

AARP supplies information about caregiving, long-term care and aging, including publications and audio-visual aids for caregivers.

The National Association of Professional Geriatric Care Managers
520-881-8008
Website: www.caremanager.org

Geriatric care managers (GCMs) are health care professionals, most often social workers, who help families in dealing with the problems and challenges associated with caring for the elderly. This national organization will refer family caregivers to their state chapters, which in turn can provide the names of GCMs in your area. This information is also available online.

U.S. Administration on Aging
202-619-0724
Website: www.aoa.gov

The Administration on Aging is the official federal agency dedicated to the delivery of supportive home and community-based services to older individuals and their caregivers. The AoA Website has a special section on family caregiving.

End-of-Life Planning, Hospice, and Bereavement Information

Aging with Dignity
888-5-WISHES (594-7437)
Website: www.agingwithdignity.org

Aging with Dignity publishes the Five Wishes Living Will document, a very user-friendly and comprehensive document that meets legal requirements in 35 states.

Caring Connections
Website: www.caringinfo.org

Caring Connections provides free brochures on end-of-life topics including advance care planning, caregiving, hospice and palliative care, pain, grief and loss and financial issues. Caring Connections also provides Advanced Directives for all states.

HospiceDirectory.org
800-868-5171
Website: hospicedirectory.org/

Online consumer database that lists hospices in North America and the U.S. All hospices are listed at no cost. It is a free service that assists families and individuals in locating a hospice within their community quickly. Also provides reliable information about hospice and end-of-life care to consumers.

Hospice Foundation of America
800-854-3402
Website: www.hospicefoundation.org

The National Hospice Foundation hosts an annual teleconference on issues of bereavement, and has publications on grief and bereavement.

U.S. Department of Health and Human Services
National Clearing House for Long-Term Care Information
Website: www.longtermcare.gov
e-mail: aoainfo@aoa.hhs.gov

The National Clearinghouse for Long-Term Care Information provides information on planning and financing long-term care including planning for end of life care, and all major types of public and private financing to help cover long-term care costs.

Disease Specific and Health Related Agencies and Websites

Alzheimer’s Association
Toll-free: 800-272-3900
Website: www.alz.org

American Cancer Society
Toll-free: 800-ACS-2345
Website: www.cancer.org

American Diabetes Association
Toll-free patient information: 800-342-2383
Website: www.diabetes.org

American Heart Association
Toll-free: 800-AHA-USA1 (242-8721)
Website: www.americanheart.org

American Parkinson Disease Association
800-223-2732
Website: www.apdaparkinson.org

American Stroke Association
Toll-Free: 888-4-STROKE (478-7653)
Website: www.strokeassociation.org

ALS Association
Toll-free: 800-782-4747
Website: www.alsa.org

Arthritis Foundation
Toll-free 800-283-7800
Website: www.arthritis.org

The Foundation Fighting Blindness
Toll-free: 888-394-3937
Website: www.blindness.org

National Mental Health Association
Toll Free: 800-969-NMHA (6642)
Website: www.nmha.org

National Multiple Sclerosis Society
Toll-free: 800-FIGHT-MS (344-4867)
Website: www.nationalmssociety.org or www.nmss.org